Sunday, April 18, 2010
HOME AGAIN - HOME AGAIN
Let's see... where to begin. We brought Noah home from the hospital on Tuesday the 13th. We were excitedly apprehensive. We still had no clues about what caused the clotting, and he was not really feeling any better than when we took him in on the 2nd.
A few days before we left the hospital his headaches started up again and got much worse the first day we got home. Dr. Bhonsack, the doctor everyone said was super smart, was not aware that we had been sent home and called as soon as he found out to see how we were doing. I told him that Noahs headaches were getting worse and he suggested that we should take him to the ER at Primary's if they got any worse. The concern was that if the original clot in his brain had caused the initial headaches, then maybe he was having more clotting in his brain with the presence of more headaches. (I'm typing fast so let me know if I'm losing anyone.) Of course, this was very concerning to me, so the next day when his headaches became worse and his face started swelling more, I took him back to the hospital. They kept us overnight and did a CT angio of his brain as well as an MRI. They found no evidence of new clots so they felt comfortable letting us take Noah back home.
At this point, all of the test results are in and the verdict is...... well, there is no clear verdict. However, they did get a positive test result. One of the initial tests they ran is called a venom viper test. This test is for ANTIPHOSPHOLIPID SYNDROME. This test result came back slightly abnormal(not really abnormal, just a hint of abnormal). Since they didn't find much else to hang their hats on, they ran some further tests to consider the possibility of ANTIPHOSPHOLIPID SYNDROME. Several secondary tests were run. Of these, one test result WAS positive. Sounds great right. Well not really. The one positive test result has a disclaimer. If this lab test, HEXAGONAL PHOSPHOLIPID NEUTRALIZATION, is done on a blood sample of a pt who is within the therapeutic range for heparin (which Noah was on the day the test was drawn), then the possibility of a FALSE POSITIVE is GREAT. (According to the literature the doctor gave me.)
So what does this mean for Noah. It means the Rheumatologists decided to start treating him with immunosuppressant drugs (steroids for now). Although I believe they are treating him for the wrong thing, the drugs really seem to be working well. This is probably because his body was having some kind of ACUTE INFLAMMATORY RESPONSE and corticosteroids are an anti-inflammatory.
I know this probably all sounds like a bunch of rambling. I just need to get it all off my chest, and this is my way to process it. I do have a new theory.... not sure I should say or not, but really, what the heck. My new theory is....no, I'm not going to say. But I am going to ask the doctor about it on Tuesday.
Long story short. WE ARE HAPPY TO BE HOME AND ECSTATIC THAT NOAH IS FEELING A BIT MORE LIKE HIS HAPPY CHEERFUL SELF.