I feel "mixed" about the Denver trip. They didn't do alot of extra testing like I expected them to. The only test they could think of that hadn't been done already was a blood test for Paroxysmal Nocturnal Hemoglobinuria (PNH), which seems pretty unlikely to me to come back positive. We'll see!
The doctor classified what Noah had as a "Thrombotic Storm" and entered him into a Genome Research Study (more information at http://www.stoptheclot.org/News/article181.htm ). We won't get any specific info back on Noah, but if it helps in the research process, great.
Hmmmm..... what else?? So I guess we just go back to taking Noah to Primarys with any new and unusual symptoms and hope that eventually we will either figure out what his diagnosis is, or he gets better.