It's been awhile since I've given an update...so here it is. A few weeks ago, Noah woke up with a 104 degree fever and a large puffy lump on his face. We took him to the ER and they thought perhaps it was an abcessed tooth. We treated him with antibiotics and the fever and swelling went away. That week while he was on antibiotics he felt GREAT. (Had energy, overall swelling went down, etc.) BTW: We(Dr. Bhonsack and me) don't think he actually had an abcessed tooth. Not really sure what it was.
Anyway, last week we had labs re-drawn to check sed rate and crp (which had been going back up since stopping steriods). They are both back to normal. AWESOME.
We also re-checked the labs for Antiphospholipid Syndrome. Remember this is the "soft" diagnosis they gave him but had to recheck later and have a positive result to confirm diagnosis. Well, guess what ... the results were NEGATIVE. So the originally "soft" diagnosis for this is now more like "ooozy goozy runny - not really likely at all" diagnosis. Big suprise! ;)
So, this weeks labs were MOSTLY normal. However, his White Blood Cell count this week is low. (WBC:3.0, should be between 5-10ish) What does this mean, you ask? I DON'T KNOW WHAT THE !$#^@!&^#%$ THAT MEANS. NOBODY DOES! We just have to keep waiting and seeing. :(
So how is Noah feeling... Sometimes he seems okay. But alot of the time lately he seems VERY TIRED, DECREASED APPETITE, AND HE LOOKS LIKE THE ANEMIA MIGHT BE COMING BACK (PALE SKIN AND LIPS).
I talked to his doctor a couple days ago and we are going to move up the next ultrasound to look at the clot again. So that will most likely be next Tuesday.
So, How am I doing, you ask?
I am very very close to completely LOSING IT! Maybe it's because of the "Noah" thing, OR the not working anymore thing, OR maybe it's my marriage, OR could it be the NO money and lots of bills thing, OR maybe my current "lack of faith" thing. I'm not sure, I just can't seem to put my finger on it. Whatever it is, just know that asking me how I'm doing, may open up a BIG 'OLE can of gummy worms that you just were not expecting. So proceed with caution. :)