Saturday, July 31, 2010
OH Canada!
Havin' a great time with my little sister Jami and her family. Photographic evidence is yet to come..................................................as soon as I figure out how to download stuff on her computer. See ya all later, EH!
Tuesday, July 13, 2010
Soooo the good news....
Update on Noah:
The Good News: Today we took Noah in for an ultrasound to check the progress on his IVC Thrombosis and there has actually been some progress. He now has some flow through his inferior vena cava where there previously was none.
The Bad News: Last night Noah started vomiting alot, so after he had his ultrasound today, Dr. Bhonsack did his assessment and sent us back down to ultrasound to look at his appendix. Long story short - Noah just got out of surgery for an appendicitis. Originally when I found out, I thought maybe it was a good thing. Maybe this has been going on for months now and was causing some of the weird symptoms he's had. Unfortunately, the surgeon does not agree. She said his appendicitis was a stage 2 and has probably only been there for a day or two. Anyway, we are at Primary Childrens again, hopefully just for a couple of days.
The Good News: Today we took Noah in for an ultrasound to check the progress on his IVC Thrombosis and there has actually been some progress. He now has some flow through his inferior vena cava where there previously was none.
The Bad News: Last night Noah started vomiting alot, so after he had his ultrasound today, Dr. Bhonsack did his assessment and sent us back down to ultrasound to look at his appendix. Long story short - Noah just got out of surgery for an appendicitis. Originally when I found out, I thought maybe it was a good thing. Maybe this has been going on for months now and was causing some of the weird symptoms he's had. Unfortunately, the surgeon does not agree. She said his appendicitis was a stage 2 and has probably only been there for a day or two. Anyway, we are at Primary Childrens again, hopefully just for a couple of days.
Thursday, July 1, 2010
Update on NOAH!
It's been awhile since I've given an update...so here it is. A few weeks ago, Noah woke up with a 104 degree fever and a large puffy lump on his face. We took him to the ER and they thought perhaps it was an abcessed tooth. We treated him with antibiotics and the fever and swelling went away. That week while he was on antibiotics he felt GREAT. (Had energy, overall swelling went down, etc.) BTW: We(Dr. Bhonsack and me) don't think he actually had an abcessed tooth. Not really sure what it was.
Anyway, last week we had labs re-drawn to check sed rate and crp (which had been going back up since stopping steriods). They are both back to normal. AWESOME.
We also re-checked the labs for Antiphospholipid Syndrome. Remember this is the "soft" diagnosis they gave him but had to recheck later and have a positive result to confirm diagnosis. Well, guess what ... the results were NEGATIVE. So the originally "soft" diagnosis for this is now more like "ooozy goozy runny - not really likely at all" diagnosis. Big suprise! ;)
So, this weeks labs were MOSTLY normal. However, his White Blood Cell count this week is low. (WBC:3.0, should be between 5-10ish) What does this mean, you ask? I DON'T KNOW WHAT THE !$#^@!&^#%$ THAT MEANS. NOBODY DOES! We just have to keep waiting and seeing. :(
So how is Noah feeling... Sometimes he seems okay. But alot of the time lately he seems VERY TIRED, DECREASED APPETITE, AND HE LOOKS LIKE THE ANEMIA MIGHT BE COMING BACK (PALE SKIN AND LIPS).
I talked to his doctor a couple days ago and we are going to move up the next ultrasound to look at the clot again. So that will most likely be next Tuesday.
So, How am I doing, you ask?
I am very very close to completely LOSING IT! Maybe it's because of the "Noah" thing, OR the not working anymore thing, OR maybe it's my marriage, OR could it be the NO money and lots of bills thing, OR maybe my current "lack of faith" thing. I'm not sure, I just can't seem to put my finger on it. Whatever it is, just know that asking me how I'm doing, may open up a BIG 'OLE can of gummy worms that you just were not expecting. So proceed with caution. :)
Anyway, last week we had labs re-drawn to check sed rate and crp (which had been going back up since stopping steriods). They are both back to normal. AWESOME.
We also re-checked the labs for Antiphospholipid Syndrome. Remember this is the "soft" diagnosis they gave him but had to recheck later and have a positive result to confirm diagnosis. Well, guess what ... the results were NEGATIVE. So the originally "soft" diagnosis for this is now more like "ooozy goozy runny - not really likely at all" diagnosis. Big suprise! ;)
So, this weeks labs were MOSTLY normal. However, his White Blood Cell count this week is low. (WBC:3.0, should be between 5-10ish) What does this mean, you ask? I DON'T KNOW WHAT THE !$#^@!&^#%$ THAT MEANS. NOBODY DOES! We just have to keep waiting and seeing. :(
So how is Noah feeling... Sometimes he seems okay. But alot of the time lately he seems VERY TIRED, DECREASED APPETITE, AND HE LOOKS LIKE THE ANEMIA MIGHT BE COMING BACK (PALE SKIN AND LIPS).
I talked to his doctor a couple days ago and we are going to move up the next ultrasound to look at the clot again. So that will most likely be next Tuesday.
So, How am I doing, you ask?
I am very very close to completely LOSING IT! Maybe it's because of the "Noah" thing, OR the not working anymore thing, OR maybe it's my marriage, OR could it be the NO money and lots of bills thing, OR maybe my current "lack of faith" thing. I'm not sure, I just can't seem to put my finger on it. Whatever it is, just know that asking me how I'm doing, may open up a BIG 'OLE can of gummy worms that you just were not expecting. So proceed with caution. :)
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