UM.......NOAH?????

Too Funny!!

My first REAL cake gig!

A friend of mine called the other day and said she heard that "I do cakes". Well, naturally I said, "Yeah......I do cakes." So she asked how much I charged....and WALLA a new career was born. Hehe. This is my first official cake. I got the idea from one of my old highschool friends who has a cake blog AND is super talented. http://sarahsievecakes.blogspot.com/

So there you have it. It doesn't pay as much as nursing, but it's definately more fun. :)

Ohhh!!! The Power of Prayer

At a recent Stake Conference, our Stake President gave a wonderful talk about prayer. He encouraged families to make it a regular practice to "kneel" together before the Lord in prayer. We decided to give it a try.

It began well.

Look at us, perfectly kneeling. We almost look like the family in the primary pictures.

But then after a few weeks, it turned into this...

And after a month, things began to go down hill...

At least Hunter is faithful with his scripture study!!!

Is there any hope for the Rogers Family?

Our Newest Addition

This is our new PUPPY!!!!! Yay! She's a total sweetie. Okay really we got her about 6 weeks ago, but I didn't want to jump the gun and say we had a puppy before we gave her a test run. (Seeing that we have a history of getting puppies and then giving them away cuz they are too "puppy like".) Haha, right DAD! :)

Andi's Birthday Cake

Tonight we hosted a birthday party at our house for two of my nieces. Andi turned ONE and Kenzie turned SIX. I made the cake for Andi. Kenzie got cupcakes with her name on them. Her mom is making her a power puff cake later this week. :)

Rogers Family Christmas Party!

Dans family knows how to throw a party! This was the grand finale of the annual talent show. Oh I WISH I would have gotten a video of "The Ro Bros" performing their talent! Dan was lead vocal and guitarist, Noah on piano, Jake on drums, and Hunter on Violin. I was soooo impressed and soooo proud. They ROCKED!

C is for ... Cavernous reCanalization with Collateral veins

Where do I start .... in July of this year Noah had an ultrasound where the radiologist determined his clot to be resolved. Unfortunately that same day, they also determined that he had an appendicitis. So he went to surgery. Because of the surgery, he also went off of anticoagulation medication.

Then about a month or so ago, Noah had an echocardiogram. The cardiologist was concerned about something he saw and recommended we do an abdominal CT.

So last week we had an abdominal CT done. The results were SUPRISING. Cavernous recanalization of the IVC with collateral veins. What does this mean???? The way the radiologist described it to me was that his IVC was essentially gone and there were little veins that had grown all over in his abdomen to compensate for losing the Inferior Vena Cava.

Unfortunately I dont what the ramifications of this will be. First of all, the question I have is .... did a new clot develop in the 2 weeks that he was off coumadin OR did the radiologist that read the ultrasound in July get it wrong. This is important to know because in April next year another doctor plans to try to take him of anticoagulation therapy. My second question would be.... what will this mean for him in the future? Will he always be tired? Will he always have abdominal pain and chest pain?? Will I ever post about anything other than Noahs health issues again??? HMMMMMMMM :)

The Doctor Says.....

I feel "mixed" about the Denver trip. They didn't do alot of extra testing like I expected them to. The only test they could think of that hadn't been done already was a blood test for Paroxysmal Nocturnal Hemoglobinuria (PNH), which seems pretty unlikely to me to come back positive. We'll see!

The doctor classified what Noah had as a "Thrombotic Storm" and entered him into a Genome Research Study (more information at http://www.stoptheclot.org/News/article181.htm ). We won't get any specific info back on Noah, but if it helps in the research process, great.

Hmmmm..... what else?? So I guess we just go back to taking Noah to Primarys with any new and unusual symptoms and hope that eventually we will either figure out what his diagnosis is, or he gets better.

Headed for DENVER!

Bright and early tomorrow morning the boys and I are heading to Denver so Noah can see the hematologist/thrombosis specialist out there. He seems to be doing fairly well for that last few weeks. The only real update is that we took him in a couple weeks ago for a follow up echocardiogram for a dilated aortic root. The aortic root was about the same, however, the cardiologist said he peaked at his IVC (where the clot 'was' but apparently had gone away), and he thought that it "might be back". I wasn't sure what to do with that information except wait for Denver. So hopefully this doctor will not only tell us if the clot has actually come back, but also what in the heck is causing it!!!!!!!! Please, everybody pray that we'll have a safe trip and that we'll come back with some answers.

Annual Haunted House

Have you EVER seen SPOOKIER gingerbread than this????? BOO!

Thanks Tonia!